Children’s Healthcare Canada - Announcing our first Child Health Hubs!

infographic_r2_04-child-health-hubs sm.png

There is so much exciting work happening across our member organizations and so many individuals who want to meet and share what they are doing. The application for the first round of child Health Hubs is now closed and we were thrilled with the response from this very engaged community.

We would like to welcome the following Child Health Hubs to Children’s Healthcare Canada and are pleased to support their efforts

Clinical Genetics and Genomics in the Era of Precision Health: An informal Genetics Management Network was established in 2017 with an objective of addressing pressing priorities within our services. Two priorities include Genetic Counselling workforce benchmarking and sharing innovative service models that enhance access to genetic counselling, diagnostic and testing services.

Transition to Adulthood: This Child (Adolescent) Health Hub brings together a strong and cohesive national team of researchers, clinicians, patients and families, and key leading health and community-based organizations to address the issues of youth with special health care needs requiring ongoing health surveillance and care to maintain optimal health, and their families while transitioning from paediatric to adult systems of care. Our long-term goal is to prevent avoidable negative care experiences, adverse health outcomes, and the unnecessarily high burden of transition to adulthood for patients and families by improving the daily management of youth aged 12 to 25 years with special health care needs.

For more information or to become a member please contact Dayle McCauley

Pediatric Intensive Care Unit: Data Sharing and Quality Improvement: A national hub for pediatric intensive care data sharing and quality improvement and research, with the ambition of building a sustainable registry of critically ill children across Canada. For more information or to become a member please contact Dr. Srinivas Murthy

Choosing Wisely and Resource Stewardship in Pediatrics: The Choosing Wisely in Paediatrics Hub’s mandate is to foster knowledge sharing and collaborative learning to promote high-quality, value-added care by focusing on overutilization of certain tests and therapies. This will be facilitated through:

1. Building capacity in QI/resource stewardship (Choosing Wisely) by sharing lessons learned and successful initiatives;
2. Supporting continuous QI/resource stewardship (Choosing Wisely) efforts;
3. Promoting consistency in recommendations locally, provincially and nationally;
4. Supporting the spread of evidence-based best practices related to the delivery of paediatric health care;
5. Developing a central repository for idea sharing; and
6. Engaging in new opportunities for collaboration

For more information, please email

Pediatric Inpatient Research Network: The Canadian Pediatric Inpatient Research Network (PIRN) is a hospital-based research network focused on generating scientific knowledge to improve the outcomes of hospitalized children through the conduct of multi-centre, patient-oriented research including comparative effectiveness and implementation science research. The goal of the network is also to generate this knowledge to improve outcomes at the systems level (e.g. improve cost-effectiveness and efficiency of the system), knowledge translation and build research capacity through training and mentorship. The network is focused on studying children with common and/or cumulatively expensive conditions in general pediatric hospital settings. PIRN includes hospital sites at all academic children’s hospitals across Canada and several large community hospitals in Ontario.

Stay tuned for activities, updates and opportunities to become involved in these Hubs.

We will reopen the application process and announce more Hubs in the coming months.

Lisa StromquistComment